Tree of Hope

Please help me raise funds for Dysautonomia Support Network; an organization near and dear to my heart.

This amazing charitable, non-profit organization helps support patients and increase awareness of an illness of which I suffer. It would mean a lot to me if you could help – plus this t-shirt is adorable!!

imageAren’t these shirts cute?? Plus you’ll be helping a great cause!

imageA little about the Dysautonomia Support Network:

imageThe Dysautonomia Support Network is a U.S. based 501 (c) (3), non-profit organization providing support, resources, education and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Activation Disorders, Chiari Malformation and Gastric Motility Disorders.

Volunteers are trained to help patients through every stage of their journey, from diagnosis to advocacy. THey promote a positive but realistic environment and a sense of community in our national and state chapters.

What is Dysautonomia? Well, here’s the short answer:

Dysautonomia (or autonomic neuropathy) is a term for various conditions in which the autonomic nervous system (ANS) does not work correctly. Dysautonomia is a type of neuropathy affecting the nerves that carry information from the brain and spinal cord to the heart, bladder, intestines, sweat glands, pupils, and blood vessels.

There is no cure. There are only a few treatment options available. Very few  doctors have an understanding of this illness and even fewer specialize. It took me 10+ years of seeing countless doctors before I was diagnosed and another 10 years before I found doctors who  are actually able to work, treat, and manage my illness.

 

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I hope you grab one of these great shirts as your donation will help spread awareness. Help educate doctors and patients alike. Help research new treatments and look for a cure.

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Are you a faker?


When I initially read this story I was heartbroken. Even though this specific circumstance is one I have yet to experience,  I was horrified. This is something that could easily happen to me. That it could happen to any of the millions who suffer from invisible illnesses. Being judged so severely because your illness is invisible. Being judged because of the way a someone thinks you are hysterical when you are trying manage and hide what is happening inside you at that moment.

This amazing young woman has been able to turn this around into a positive by getting people talking about this illness. While POTS is not a rare illness, it is a very uncommon one.

You may have seen the story while scrolling through Facebook or in a brief news story.

Woman Called “Faker” Because of Invisible Illness
When someone put a note that said “Faker” on Julie’s car parked in a handicapped spot, she posted the note on social media, turning a moment of defeat into an opportunity to teach others about her invisible illness.

The Doctors explain the condition that can cause Julie to faint at almost any moment.

http://www.thedoctorstv.com/videos/woman-called-faker-because-of-invisible-illness

POTS impacts 1-3 million Americans – an estimated 1 out of 100 teens and adult patients too. Learn more about #POTS:

www.dysautonomiainternational.org/POTS

I’ve been sharing more emotions and challenges I encounter with the illness I fight each day. It’s still very difficult to explain and for others to understand when they can’t really see it in front of them.

October is Dysautonomia Awareness Month. I truly hope more people and doctors will be exposed, if only for a moment, to discussions about this illness. This illness could be affecting coworkers, friends, without knowing. A little understanding and awareness goes a long way.

#POTS #MakeNoiseForTurquoise #DysautonomiaAwareness