Sunday Fundraiser Day And More

What are your plans for this wonderful Sunday? THe Dysautonomia Support Network has lots going on!

DSN online Fundraiser Shopping Event

Check out the DSN Online Shopping Fundraiser Event with vendors who will be donating a portion of the proceeds to the Dysautonomia Support Network.

Make sure you RSVP as “Going” to get notifications for free product giveaways! When entering the event, click on discussions or see all posts to shop.

Vendors include Thirty One Gifts, Mary Kay, Spoonspirations (Awareness), The Cocoa Exchange, Pampered Chef, Avon and more!

Tonight’s Vendor Spotlight is with Mary Kay – Danielle Coughlan, Independent Sales Director – who will be donating 40% of her sales to DSN! Wow!!

Check out her website – – and enter the comment code #dyssupport to ensure it is counted towards the fundraiser. 

Make sure to take a look at their newest product – the Charcoal Mask!!

🌚 It’s time!! Independent beauty consultants can now order Mary Kay’s BRAND NEW Charcoal mask! It is officially released!

🤷🏻‍♀️ SO WHY MASK? ⬇️
▪️ Hydrates Your Skin
▪️ Removes excess oil
▪️ Pulls out impurities
▪️ Deeper clean than a cleanser
▪️ Makes your skin glow
▪️ Minimizes appearance of pores

❌ Damages, rips, and stretches pores
❌ Pulls out your peach fuzz on your face!!
❌ Removes the first layer of skin only
❌They HURT!!! 😭

▪️ Activated charcoal binds to the dirt, toxins, impurities, and bacteria allowing for a process called ADsorption (not absorbing) to take place by bringing everything to the surface. (See the darker spots in my picture? That’s the adsorption process taking place! EWWW but cool, right?)
▪️Pores become less visible because dirt and oil makes them appear bigger
▪️It contains no glue, so you rinse off the mask- avoiding damaging the skin.


EDS Awareness Month Fundraiser

For EDS Awareness Month, I’m doing a fundraiser for DSN. All money donated goes directly to DSN to use for support, scholarships, research, education, and more!

I will be giving thank you gifts for donations – EDS Necklaces, bracelets, earrings, keychains and more!

Prize Station!!


DSN Book Club

The DSN Book Club is meant to inspire, enlighten and enable us to overcome the unique challenges we face with chronic illness and pain by exploring a variety of books throughout the year that bring out our inner strength and keep us moving forward.

Don’t forget to check out DSN’s New Lifestyle groups as well as their state support groups.

So much going on today that you can do in your comfy pjs or Lularoe – shop online, donate for a good cause, get support, join discussions, and/or read a book. What are you going to do? Let me know in the comments below!


EDS Awareness Month Challenge – Day 5

The Dysautonomia Support Network, in honor of EDS/HSD Awareness Month, is doing a daily my awareness / my story challenge. When I was adding my little story to Facebook for the challenge, I realized that this one hit a nerve pretty hard. I thought I should just go ahead and share it here as well.


Day 5. Describe how invisible illnesses EDS/HSD subject you to judgment from strangers, friends, and family. Join us in sharing your story with our #MyAwarenessStory prompts each day. Share your story using the hashtag combo #EDS #myEDSstory #MyAwarenessStory #DysSupport OR #HSD #myHSDstory #MyAwarenessStory #DysSupport

This is one I could have done a video of because it’s one of those that hurts your heart. I’d just be a blubbering mess though lol. When you constantly say you’re in pain, people stop listening. They get tired of it. Then they judge you for it.

In high school, my teachers judged me. They didn’t believe that I was very ill. Really in pain. Even the day the principal had to call 911 b/c I collapsed in the middle of the hall and be taken to the hospital, they still didn’t believe. I clearly remembered two teachers who told me I wouldn’t make anything out of my life because of my “so called illness.”

Friends and family get tired of canceled plans. They may not even realize they are judging me for it. I can understand that they get sick of making plans and then last minute (very last minute) things have to change. It’s one of the ways I’ve lost so many friends. Lost so many connections.

Work. Work is the hardest. Your coworkers judge you for being out even when you work from home plus doing an extra 4 hours a day to make sure no one has to cover your job. Your managers, especially those micro-managers, get tired and stop believing that you’re in pain. Stop believing that you’re at doctor appointments, physical therapy, etc. It gets worse when you have that one good day, and you’re able to dress to impress, wear a full face makeup and do your hair – they don’t understand why you’re not on the ball everyday’ though they have seen you go from a stellar employee to trying to survive each day. They go from friend to manager, to enemy. They don’t understand how hard it is to have to physically call them when you’re on your way to the ER at 4 am. Then when you do – and you’re sobbing or barely able to bring together a coherent sentence they think you’re acting “childish” or “overly dramatic.” An email won’t do. A text doesn’t satisfy their needs anymore. They manage your FMLA down to the minute as if you’re trying to steal time. They decide that you are faking it or become ridiculously suspicious when you can do some work at 3 am because you are unable to sleep and might as well try to cover your job.

I also just realized I didn’t even talk about the judgment you get from others if you happen to use your handicapped parking permit on bad days.  Some days it takes everything to just walk from your parking spot to the front door. You’re young and maybe not in a wheelchair – you don’t “look sick”.  Luckily I have not been a victim of the nasty conversations or notes on the car but the fear is there every time I use it.

Wow. I guess this one meant a lot to me. The judgment hurts. Mainly because I can’t help being sick. They may understand, but it still hurts them since I canceled. We have to remember their feelings too while still taking care of ourselves. It’s a delicate balance.

I’m doing a little fundraiser for this month in honor of Ehlers-Danlos Syndromes Awareness Month. Please feel free to check it out. I’ve posted my other day challenges as well. Click on the image below for more info (it will take you to a Facebook Fundraiser).


Click on the image to donate.