People never see the worst — Brainless Blogger

This is a great post. The uncontrollably crying while in pain and having to call out. Calling out while the ER nurse starts the IV because a message was never good enough. The calling out in between vomiting spells and barely able to put a sentence together. The constant guilty feeling. The judgement in their voices.

I often wonder what people think about my bad days. When I cannot leave the house. When I cannot work. I get this impression from my workplace they think it is all fun and games for me. That I am just hanging out a home chilling. I wish people could see being closed doors. First, […]

via People never see the worst — Brainless Blogger

Tree of Hope

Please help me raise funds for Dysautonomia Support Network; an organization near and dear to my heart.

This amazing charitable, non-profit organization helps support patients and increase awareness of an illness of which I suffer. It would mean a lot to me if you could help – plus this t-shirt is adorable!!

imageAren’t these shirts cute?? Plus you’ll be helping a great cause!

imageA little about the Dysautonomia Support Network:

imageThe Dysautonomia Support Network is a U.S. based 501 (c) (3), non-profit organization providing support, resources, education and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Activation Disorders, Chiari Malformation and Gastric Motility Disorders.

Volunteers are trained to help patients through every stage of their journey, from diagnosis to advocacy. THey promote a positive but realistic environment and a sense of community in our national and state chapters.

What is Dysautonomia? Well, here’s the short answer:

Dysautonomia (or autonomic neuropathy) is a term for various conditions in which the autonomic nervous system (ANS) does not work correctly. Dysautonomia is a type of neuropathy affecting the nerves that carry information from the brain and spinal cord to the heart, bladder, intestines, sweat glands, pupils, and blood vessels.

There is no cure. There are only a few treatment options available. Very few  doctors have an understanding of this illness and even fewer specialize. It took me 10+ years of seeing countless doctors before I was diagnosed and another 10 years before I found doctors who  are actually able to work, treat, and manage my illness.

 

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I hope you grab one of these great shirts as your donation will help spread awareness. Help educate doctors and patients alike. Help research new treatments and look for a cure.